"What works for your child is what makes the choice right!"

Legislation

There are several legislative issues potentially affecting our children and families right now.  Please take time to investigate each on your own and contact your Senators and Representatives to let them know which you support or oppose!

NCHAM has some talking points and sample letters for you to consider when communicating with your legislators - some of this refers only to hearing aid legislation, some is more general   http://www.infanthearing.org/legislation/hearingaid.html  

 

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Your Texas Senators  
www.senate.state.tx.us

Your Texas House of Representatives  
www.house.state.tx.us

   Track Texas Legislation HERE www.capitol.state.tx.us
   
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US Senators - Texas    www.senate.gov

US Representatives Texas   www.house.gov

   Track US Legislation HERE www.govtrack.us

CURRENT and UPCOMING LEGISLATION NEEDING YOUR INPUT -
* Inclusion or omission of a bill, act or movement below does not indicate TXHV support or opposition. We have shared some links that explain each of the bills/movements, but PLEASE RESEARCH on your own and make an informed decision before contacting your legislators!  

If you are aware of another bill/act/grassroots effort not mentioned here, please let us know!

 

85th Legislature Regular Session (2017)

Flag_of_Texas.svg (50).jpg HB 490 & SB 552 These bills would require health benefit plans to provide coverage for the cost of medically necessary hearing aids or cochlear implants and related services and supplies for a covered individual who is 18 years of age or younger.  Coverage is limited to one hearing aid in each ear every three years and one cochlear implant in each ear with internal replacement as medically or audiologically necessary.  
Visit  www.lettexashear.org or www.facebook.com/lettexashear/ for more info on efforts for this session.

 

Flag_of_Texas.svg (50).jpg SB 354  -  Lead K is a grassroots movement to ensure all Deaf/Hard of Hearing kids have access to ASL + English from birth - 8 yo for Kindergarten readiness.

The overall idea of this bill is to put into place processes to ensure a language delay can be caught and addressed before it greatly impacts education.

This bill is currently being amended. The revisions address much of the language that has been controversial. We will update you when the revisions are available to the public.
  Q&A   FAQ    www.facebook.com/pg/LEADKTexas for more info on efforts for this session.  

Flag_of_Texas.svg (50).jpg Update request of the following statute:  Health And Safety Code Title 2. Health 

Subtitle B.  Health Programs  Chapter 47. Hearing Loss In Newborns

The requested update is regarding consent to share parameters. The current wording suggests needing written consent to share information at each stage of the continuum. This is an added burden to sharing public health surveillance records (by default not under HIPPA), delaying diagnosis and the ability to adhere to the best practices of the 1-3-6 continuum which the code requires. This delay is also resulting in extra cost to educate the children who are not being enrolled in early intervention. The update would clarify that the written parental consent to share information, referred to in sections 47.007 and 47.008, includes any and all appropriate screening, follow-up, diagnostic, ancillary and intervention components and service providers. The purpose of this exchange of information within the TEHDI team is to help ensure that each child and family receive services as quickly as possible.

contact Amanda @ Sen Juan Hinojosa's office to share your input on this update request.

 

 115th Congress (2017)

usa-flag 50.png  H.R. 1120 aka the Alice Cogswell and Anne Sullivan Macy Act  To promote and ensure delivery of high quality special education and related services to students with visual disabilities or who are deaf or hard of hearing or deaf-blind through instructional methodologies meeting their unique learning needs; to enhance accountability for the provision of such services, and for other purposes.

#CogswellMacyAct

 For more info please read the bill and these websites www.ceasd.org/child-first/alice-cogswell and www.AFB.org/MacyAct or contact Barbara Raimondo, Government Relations Liaison for the Conference of Educational Administrators of Schools and Programs for the Deaf at baraimondo@me.com.

NFADB and the CHARGE Syndrome Foundation talking points

CMA Senate Talking points  English    Spanish

CMA House Talking points   English     Spanish

Sample letter to Representative (DeafBlind talking points)

 

 

 

 


TLO - Texas Legislature Online

Create a list of bills that you would like to watch.  Enter bills on the alert list, be notified of committee and calendar postings, be notified when bills are assigned subjects of interest, be notified when the house or senate adjourn.   RSS feeds and Mobile versions also available here. 

  • Access a mobile version of TLO, Who Represents Me, and DistrictViewer on an iPhone, iPad, or other mobile device. From the mobile device browser, enterwww.txlegis.com. NOTE: Some applications or features within an application may not be accessible on all mobile devices.

 

Don't forget to provide input to the Sunset Commission if you cannot get to Austin for the meetings - 
https://www.sunset.texas.gov/meetings

US Senate  http://www.senate.gov  

for current bills click on "Session Schedule"  then "Active Legislation"

 

US House of Representatives   http://www.house.gov/

legislative activity links should be on the home page


 

JCIH Position Statement - The Joint Committee on Infant Hearing was established in late 1969 and was charged with a two-fold responsibility: first, to make recommendations concerning the early identification of children with, or at-risk for hearing loss and second, newborn hearing screening.  The Joint Committee on Infant Hearing (JCIH) endorses early detection of and intervention for infants with hearing loss. The goal of early hearing detection and intervention (EHDI) is to maximize linguistic competence and literacy development for children who are deaf or hard of hearing. Without appropriate opportunities to learn language, these children will fall behind their hearing peers in communication, cognition, reading, and social-emotional development.